Welcome to Trusted Care
As a subsidiary of Cystic Fibrosis Queensland we have more than 60 years’ experience in the community care sector. It is this unique position and our firsthand experience which makes us your first choice when it comes to NDIS, no matter where you reside in Australia. Now that’s care you can trust!
We seek to reduce the impact of disability on how a person manages everyday activities by providing support which allows them to live an ordinary life. View our strategic plan.
Our plan management and support services are available to all Australians who qualify for NDIS support. All profit made by our organisation is returned to people living with cystic fibrosis who sadly are yet to receive NDIS support.
A better NDIS for people living with cystic fibrosis
Cystic fibrosis is the most common, life-shortening chronic illness in Australia today. A baby is born with cystic fibrosis every four days, there is no cure. On behalf of people living with cystic fibrosis, Trusted Care is campaigning for improvements to the NDIS to better meet the needs of people living with cystic fibrosis,
To improve the NDIS for the cystic fibrosis community, we believe there are three essential areas for reform:
1. Better representation of people with progressive chronic illness and associated co-morbidities (especially mental health) within the National Disability Insurance Agency (NDIA).
2. A better understanding of cystic fibrosis and the needs of people living with the disease.
3. Provision of disability supports and services for all Australians regardless of age.
Despite one in 25 Australians being carriers of the defective cystic fibrosis gene, there is little awareness about the condition and the impact on livelihood for people living with the disease.
Today, more than 3 700 Australians live with cystic fibrosis. From birth, sticky mucus lines the lungs and airway passages, slowly shutting down organs and leading to a painful death. Research has led to life-changing modulator drugs which address the lung exacerbations experienced by people living with cystic fibrosis and while these drugs are extending life, they are not a cure. People living with cystic fibrosis face organ transplant, diabetes, pancreatic deficiencies, fertility complications and an inability to control their body’s internal heating and cooling system. In addition, there is the impact on mental health and wellness which comes from living with a life shortening chronic illness.
Trusted Care is calling for equitable access to the NDIS for all our clients, and this includes people living with cystic fibrosis.
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